The branch offers support to all those in the county and surrounding areas who are living with Motor Neurone Disease (MND). This includes their partners, carers, relatives and friends.
They have specially trained care service navigators (CSNs) and association visitors attached to the branch who have personal and direct contact with individuals living with MND.
The CSNs can be the first to help and put members and their carer/family in touch with local sources of support from the medical profession and social services. They ensure they can find their way through the health and social care system.
Their role does not offer continuing ongoing support. The AVs give ongoing visits and support the families through the most difficult times and often liaise with and raise awareness amongst the health and social care professionals who may not previously have encountered this illness. Social afternoon gatherings are held on a monthly basis at venues in Cambridge, Ely, Huntingdon and Peterborough where members and their families/carers can come together to chat, exchange ideas and generally socialise with those going through a similar journey. A quarterly newsletter offers a wide range of topics, keeps people in touch and members are encouraged to contribute if they wish.
The branch is entirely self-funding and run by volunteers, relying on income from fund raising events and sponsored activities or donations from events organised by clubs, pubs and individuals. National MNDConnect – 0808 802 6262